Here is a tribute to the children who have lost their battle with IRF2BPL/NEDAMSS. Though their lives were far too short, their impact has left lasting footprints on our hearts forever.
Caleb MacKay
April 24, 2011 - January 9th, 2021.
" Caleb was the sweetest boy ever. He had the best smile and laugh that would light up anybody’s day."
April 24, 2011 - January 9th, 2021.
" Caleb was the sweetest boy ever. He had the best smile and laugh that would light up anybody’s day."
Félip Roussy
September 23, 2014 - January 29, 2025
"Félip was such a sweet boy with an easy-going personality. He loved music, going outside and being in the water. He is missed beyond measure."
September 23, 2014 - January 29, 2025
"Félip was such a sweet boy with an easy-going personality. He loved music, going outside and being in the water. He is missed beyond measure."
Breawna Mullins
October 16, 2007 - January 21, 2024 "Breawna used to love to wear dresses and skirt. She hated jeans. She wanted whatever she was wearing to be able to twirl when she spun around. She loved all things Princess. Her favorites were Elsa and Ariel and she loved to play dress up. She also loved Miraculous Ladybug, dogs, animals of all kinds. She used to love to eat and dip everything she could in ranch dressing. She loved everyone and especially loved Holidays and Birthdays. She would get so excited about her birthday and to celebrate others birthdays. Things got a lot harder in her last several years of course. She fought every obstacle and sickness that came her way. She had a strong will to survive. She loved big and fought so hard." |
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Ronja Loblich
August 19, 2008 - October 29, 2022
"We wish life had given her more time. Ronja was truly special. She had a smile that charmed everyone. She taught us what's really important in life. We are eternally grateful to her and miss her every second."