Kaylee's Krusade
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Help Me Fight My Rare Disease!!!
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Welcome to Kaylee's Krusade

In February 2020, our little warrior was diagnosed with a rare disease called IRF2BPL/NEDAMSS. Here you will find information on Kaylee's rare IRF2BPL gene mutation related disease. You will find ways to support Kaylee and the other amazing kids like her. We are fighting for research, hope and a cure!!!
Help us find a cure

​Visit our amazing foundation pages at www.yellowforyiannis.org  www.toughgenes.org or www.idreamforacure.org
​ to learn more about how you can help all the strong warrior kids fighting IRF2BPL related disease.  
Donate to Kaylee's Krusade
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                                         Summer 2015
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                                                        Easter 2020
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Princess photoshoot 2022

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                                       Mermaid photoshoot 2024
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  • Home
  • IRF2BPL
  • In Memoriam
  • Adventures of Kaylee and Lady
  • Our Journey
  • Pictures
  • Contact