Help Me Fight My Rare Disease!!!
Welcome to Kaylee's Krusade
In February 2020, our little warrior was diagnosed with a rare disease called IRF2BPL/NEDAMSS. Here you will find information on Kaylee's rare IRF2BPL gene mutation related disease. You will find ways to support Kaylee and the other amazing kids like her. We are fighting for research, hope and a cure!!!
Visit our amazing foundation page at www.standbyeli.org to learn more about how you can help all the strong warrior kids fighting IRF2BPL related disease.