September 01st, 2020

We are the Bland family. Well, truth be told the "not so bland" family. Our life has become anything but plain or normal in the last few years. This is our page to help gain support and spread awareness of the extremely rare disease that our middle child was diagnosed with in February of 2020. I am hoping by sharing what our family is going through that we can bring awareness to an extremely rare disease. We also hope to give support to other families as they try to navigate a new normal after a devastating diagnosis.