October 20th, 2020

I read an article recently about how lonely life is as a special needs mother. It truly struck me that I still don't refer to myself as a special needs mother. I think this title has been harder to come to terms with then Kaylee's diagnosis in February.  It's a hard concept to go from thinking you are going to find an answer to what is ailing your child and be able to fix it....to where we are and there is no cure, there isn't much known about this disease and there is little help because we are also in the middle of a worldwide pandemic. So, life as a newly special needs mom in the midst of pandemic life has truly become so very lonely. As my oldest child says, "all we need is FAITH, TRUST and PIXIE DUST". And with that I know that we will get through this by finding the little snippets of happiness in life. We will get through this by our faith in God. We will get through this because Kaylee is an amazing fighter with a spirit that defies this disease, and she deserves the best fight from her family and  loved ones by her side.